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Big Lottery Funding helps Charity provide information booklets for people living with Idiopathic Intracranial Hypertension

Wednesday 2 July, 2014
Idiopathic Intracranial Hypertension is a Rare Neurological disease which affects 1-2 people in every 100,000. It can affect anyone of any age, gender, ethnicity and body type. This condition is not as widely recognised as other neurological conditions, and information therefore, is not as accessible. If left untreated it can lead to permanent partial or full visual loss. The I Have IIH Foundation, with guidance from IIH Specialists at the Royal Hallamshire Hospital in Sheffield, and with the aid of Big Lottery Funding , has produced a series of booklets describing treatment through to surgery, to be made available to patients with Idiopathic Intracranial Hypertension. A total of 230 hospitals in England have received a total of nearly 8000 booklets. They have been distributed to Neurology departments who treat headache, and to Ophthalmology departments, who will hand the booklets on to patients. Distribution to the rest of the UK will follow in the near future. The accessibility of these booklets will help to inform and empower people with IIH, in regard to making informed decisions about their treatment and care, as well as enable them to inform others of their condition. The hope is that they will help thousands of individuals in the long run to benefit from the information, as well as raise awareness of this condition. These booklets will be available soon for download as a PDF file, on our soon to be launched information website www.ihaveiih.org and can also be ordered on request by emailing [email protected]. We can also be contacted via Social Media Facebook I Have IIH Foundation Twitter @IHaveIIH or via our forum  I Have IIH Foundation The Big Lottery Fund is responsible for giving out 40% of the money raised for good causes by the National Lottery. The Fund is committed to bringing real improvements to communities and the lives of people most in need and has been rolling out grants to health, education, environment and charitable causes across the UK. Since its inception in 2004 we have awarded close to £6bn. The Fund was formally established by Parliament on 1 December 2006. About the I Have IIH Foundation The I Have Foundation is a Registered Charity No 1155833, founded in 2009, and based in Sheffield, South Yorkshire. It consists of volunteers who give their time willingly to help make a difference to people living with this condition. The aim of the charity is to provide sufferers of Idiopathic Intracranial Hypertension, with online support, counselling, advice, information, resources and eventually financial aid in the UK. We also advocate for their right to social inclusion in general society, and the workplace.


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