Welcome!

Web 2.0 Authors: Elizabeth White, Esmeralda Swartz, Roger Strukhoff, Trevor Parsons, Pat Romanski

News Feed Item

UCB Harnesses the Voices of the Crohn's Disease Community during Crohn's and Colitis Awareness Week

Nationwide Campaign Features Notable Public Figures Living with Crohn's

ATLANTA, Nov. 30, 2012 /PRNewswire/ -- In recognition of Crohn's and Colitis Awareness Week (December 1-7), UCB, Inc. is directing a national effort to educate the public about Crohn's disease and inspire those living with the condition to speak out about it.  The campaign will hinge on real stories from real people succeeding in the face of Crohn's disease, adding clarity to a misunderstood condition while providing a platform for Crohn's patients to engage and draw support from one another.  Joining the cause are a diverse group of public figures who live with the condition – including Olympic kayaker Carrie Johnson and guitarist for the Grammy Award-winning band Pearl Jam Mike McCready – as well as everyday heroes like Lois Fink, co-founder of the IBD and Ostomy Awareness Ribbon, and Crohn's Advocates Cindy W., a community volunteer, and Ray C., a race car driver.

December 1-7 was designated Crohn's and Colitis Awareness Week in 2011 by the U.S. Congress[i] to educate the public about Crohn's disease and ulcerative colitis, two painful Inflammatory Bowel Diseases (IBD) that affect 1.4 million Americans.  Approximately half of the people with IBD have Crohn's disease, a chronic disorder that can be extremely painful and difficult to diagnose and treat. [ii]

Crohn's disease can take an emotional toll in addition to its physical symptoms.  Tasks like working, running errands, traveling and maintaining social or romantic relationships can often present a challenge.  Due to the persistent stigmas surrounding Crohn's disease, people living with the condition can experience feelings of embarrassment, confusion, frustration and isolation. 

"Learning I had Crohn's disease was overwhelming at first, and I felt isolated by how little I knew about the condition and the affects it would have on my life.  By educating myself and reaching out to people succeeding with Crohn's disease, I quickly reached the point where I could focus on the positive and live my life," said Johnson, who was diagnosed with Crohn's disease in 2003.  "Awareness and education can be incredibly powerful.  I want to show the world that by putting a name and a face on Crohn's disease, we can break down the isolating barriers and inspire hope in a better future."  

UCB Drives Awareness and Action
As part of a week-long tribute to the vibrant spirit of the Crohn's disease community, UCB will share videos capturing success stories from courageous individuals with Crohn's disease on the Crohn's & Me Facebook page.  Videos will feature inspiring individuals living with Crohn's disease, including Johnson, Fink and the Crohn's Advocates.

In addition, Crohn'sAdvocate™, a program that includes a team of more than 20 Advocates committed to educating the public about Crohn's disease and overcoming stigmas associated with the condition, will mobilize in early December to share their experiences, dispel myths and provide hope to others seeking to live their best life with Crohn's disease.  The Advocates will share their stories about living beyond the boundaries of Crohn's disease on Facebook.  The Advocates will also take to social media alongside Carrie Johnson to spotlight UCB's support programs that help people live beyond the boundaries of Crohn's disease.

"Crohn's and Colitis Awareness Week is the perfect time to celebrate the significant strides made to educate the public about Crohn's disease," said Carol Satler, MD, PhD, Vice President, U.S. Medical Affairs, UCB, Inc.  "This progress has been driven by individuals willing to share their personal stories about living well with Crohn's disease, which creates heightened visibility for an often misunderstood and stigmatized condition.  As a patient-centric company, we at UCB are using this time to celebrate those who courageously inspire others to talk about Crohn's disease and the importance of proper diagnosis and treatment."

More information about Crohn's and Colitis Awareness Week can be found on the Crohn's and Colitis Foundation of America website.  Information on the many resources UCB offers for the Crohn's disease community can be found at www.CrohnsAndMe.com or www.facebook.com/CrohnsAndMe.

UCB will also collaborate with HealthyWomen to spotlight Crohn's disease among the millions who depend on the organization for answers to pressing and personal healthcare questions.  Visit www.HealthyWomen.org for information on managing Crohn's disease, and look for a guest blog post from Carrie Johnson on how she overcame her condition and qualified for the Olympics not once, but three times.

About Crohn's Disease[ii]
Crohn's disease (CD) is a chronic, progressive, destructive disorder that causes inflammation of the gastrointestinal (GI) tract, most commonly at the end of the small intestine (the ileum) and beginning of the large intestine (the colon).  If not effectively treated, it may result in the need for surgery and hospitalization.  CD has been estimated to affect as many as 700,000 Americans.  People with CD can experience an ongoing cycle of flare-up and remission throughout their lives.

About UCB
UCB, Brussels, Belgium (www.ucb.com) is a global biopharmaceutical company focused on the discovery and development of innovative medicines and solutions to transform the lives of people living with severe diseases of the immune system or of the central nervous system.  With more than 8,500 people in about 40 countries, the company generated revenue of EUR 3.2 billion in 2011.  UCB is listed on Euronext Brussels (symbol: UCB).

About the Crohn'sAdvocate™ Program
Since 2009, UCB has supported the Crohn'sAdvocate™ program, which aims to connect, educate and empower those living with Crohn's disease through a variety of resources, guidance and support.  The program includes a team of more than 20 inspiring Crohn's Advocates who raise awareness of the condition by sharing with others their personal journeys living with the disease.  The program also publishes Crohn'sAdvocate, a free magazine that contains fact-based educational articles, reader-submitted content and profiles of advocates, celebrities, athletes and everyday heroes who live beyond the boundaries of Crohn's disease.

For further Information:
Andrea Levin, Associate Director, U.S. Communications and Public Relations
770.970.8352, [email protected]

Dena Koklanaris, Cooney/Waters Group
212.886.2228, [email protected]

[i] GPO.gov. Senate Resolution 199. Accessed 10/25/12. http://www.gpo.gov/fdsys/pkg/BILLS-112sres199is/pdf/BILLS-112sres199is.pdf

[ii] Crohn's & Colitis Foundation of America, About Crohn's Disease. Accessed 8/24/12. (http://www.ccfa.org/what-are-crohns-and-colitis/what-is-crohns-disease/).

SOURCE UCB

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

@ThingsExpo Stories
Samsung VP Jacopo Lenzi, who headed the company's recent SmartThings acquisition under the auspices of Samsung's Open Innovaction Center (OIC), answered a few questions we had about the deal. This interview was in conjunction with our interview with SmartThings CEO Alex Hawkinson. IoT Journal: SmartThings was developed in an open, standards-agnostic platform, and will now be part of Samsung's Open Innovation Center. Can you elaborate on your commitment to keep the platform open? Jacopo Lenzi: Samsung recognizes that true, accelerated innovation cannot be driven from one source, but requires a...
P2P RTC will impact the landscape of communications, shifting from traditional telephony style communications models to OTT (Over-The-Top) cloud assisted & PaaS (Platform as a Service) communication services. The P2P shift will impact many areas of our lives, from mobile communication, human interactive web services, RTC and telephony infrastructure, user federation, security and privacy implications, business costs, and scalability. In his session at Internet of @ThingsExpo, Robin Raymond, Chief Architect at Hookflash Inc., will walk through the shifting landscape of traditional telephone a...
SYS-CON Events announced today that SOA Software, an API management leader, will exhibit at SYS-CON's 15th International Cloud Expo®, which will take place on November 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. SOA Software is a leading provider of API Management and SOA Governance products that equip business to deliver APIs and SOA together to drive their company to meet its business strategy quickly and effectively. SOA Software’s technology helps businesses to accelerate their digital channels with APIs, drive partner adoption, monetize their assets, and achieve a...
From a software development perspective IoT is about programming "things," about connecting them with each other or integrating them with existing applications. In his session at @ThingsExpo, Yakov Fain, co-founder of Farata Systems and SuranceBay, will show you how small IoT-enabled devices from multiple manufacturers can be integrated into the workflow of an enterprise application. This is a practical demo of building a framework and components in HTML/Java/Mobile technologies to serve as a platform that can integrate new devices as they become available on the market.
SYS-CON Events announced today that Matrix.org has been named “Silver Sponsor” of Internet of @ThingsExpo, which will take place on November 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. Matrix is an ambitious new open standard for open, distributed, real-time communication over IP. It defines a new approach for interoperable Instant Messaging and VoIP based on pragmatic HTTP APIs and WebRTC, and provides open source reference implementations to showcase and bootstrap the new standard. Our focus is on simplicity, security, and supporting the fullest feature set.
BSQUARE is a global leader of embedded software solutions. We enable smart connected systems at the device level and beyond that millions use every day and provide actionable data solutions for the growing Internet of Things (IoT) market. We empower our world-class customers with our products, services and solutions to achieve innovation and success. For more information, visit www.bsquare.com.
How do APIs and IoT relate? The answer is not as simple as merely adding an API on top of a dumb device, but rather about understanding the architectural patterns for implementing an IoT fabric. There are typically two or three trends: Exposing the device to a management framework Exposing that management framework to a business centric logic • Exposing that business layer and data to end users. This last trend is the IoT stack, which involves a new shift in the separation of what stuff happens, where data lives and where the interface lies. For instance, it’s a mix of architectural style...
SYS-CON Events announced today that Utimaco will exhibit at SYS-CON's 15th International Cloud Expo®, which will take place on November 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. Utimaco is a leading manufacturer of hardware based security solutions that provide the root of trust to keep cryptographic keys safe, secure critical digital infrastructures and protect high value data assets. Only Utimaco delivers a general-purpose hardware security module (HSM) as a customizable platform to easily integrate into existing software solutions, embed business logic and build s...
SYS-CON Events announced today that Red Hat, the world's leading provider of open source solutions, will exhibit at Internet of @ThingsExpo, which will take place on November 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. Red Hat is the world's leading provider of open source software solutions, using a community-powered approach to reliable and high-performing cloud, Linux, middleware, storage and virtualization technologies. Red Hat also offers award-winning support, training, and consulting services. As the connective hub in a global network of enterprises, partners, a...
Internet of @ThingsExpo Silicon Valley announced on Thursday its first 12 all-star speakers and sessions for its upcoming event, which will take place November 4-6, 2014, at the Santa Clara Convention Center in California. @ThingsExpo, the first and largest IoT event in the world, debuted at the Javits Center in New York City in June 10-12, 2014 with over 6,000 delegates attending the conference. Among the first 12 announced world class speakers, IBM will present two highly popular IoT sessions, which will take place November 4-6, 2014 at the Santa Clara Convention Center in Santa Clara, Calif...
Connected devices are changing the way we go about our everyday life, from wearables to driverless cars, to smart grids and entire industries revolutionizing business opportunities through smart objects, capable of two-way communication. But what happens when objects are given an IP-address, and we rely on that connection, sometimes with our lives? How do we secure those vast data infrastructures and safe-keep the privacy of sensitive information? This session will outline how each and every connected device can uphold a core root of trust via a unique cryptographic signature – a “bir...
Almost everyone sees the potential of Internet of Things but how can businesses truly unlock that potential. The key will be in the ability to discover business insight in the midst of an ocean of Big Data generated from billions of embedded devices via Systems of Discover. Businesses will also need to ensure that they can sustain that insight by leveraging the cloud for global reach, scale and elasticity.
WebRTC defines no default signaling protocol, causing fragmentation between WebRTC silos. SIP and XMPP provide possibilities, but come with considerable complexity and are not designed for use in a web environment. In his session at Internet of @ThingsExpo, Matthew Hodgson, technical co-founder of the Matrix.org, will discuss how Matrix is a new non-profit Open Source Project that defines both a new HTTP-based standard for VoIP & IM signaling and provides reference implementations.

SUNNYVALE, Calif., Oct. 20, 2014 /PRNewswire/ -- Spansion Inc. (NYSE: CODE), a global leader in embedded systems, today added 96 new products to the Spansion® FM4 Family of flexible microcontrollers (MCUs). Based on the ARM® Cortex®-M4F core, the new MCUs boast a 200 MHz operating frequency and support a diverse set of on-chip peripherals for enhanced human machine interfaces (HMIs) and machine-to-machine (M2M) communications. The rich set of periphera...

SYS-CON Events announced today that Aria Systems, the recurring revenue expert, has been named "Bronze Sponsor" of SYS-CON's 15th International Cloud Expo®, which will take place on November 4-6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. Aria Systems helps leading businesses connect their customers with the products and services they love. Industry leaders like Pitney Bowes, Experian, AAA NCNU, VMware, HootSuite and many others choose Aria to power their recurring revenue business and deliver exceptional experiences to their customers.
The Internet of Things (IoT) is going to require a new way of thinking and of developing software for speed, security and innovation. This requires IT leaders to balance business as usual while anticipating for the next market and technology trends. Cloud provides the right IT asset portfolio to help today’s IT leaders manage the old and prepare for the new. Today the cloud conversation is evolving from private and public to hybrid. This session will provide use cases and insights to reinforce the value of the network in helping organizations to maximize their company’s cloud experience.
The Internet of Things (IoT) is making everything it touches smarter – smart devices, smart cars and smart cities. And lucky us, we’re just beginning to reap the benefits as we work toward a networked society. However, this technology-driven innovation is impacting more than just individuals. The IoT has an environmental impact as well, which brings us to the theme of this month’s #IoTuesday Twitter chat. The ability to remove inefficiencies through connected objects is driving change throughout every sector, including waste management. BigBelly Solar, located just outside of Boston, is trans...
SYS-CON Events announced today that Matrix.org has been named “Silver Sponsor” of Internet of @ThingsExpo, which will take place on November 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. Matrix is an ambitious new open standard for open, distributed, real-time communication over IP. It defines a new approach for interoperable Instant Messaging and VoIP based on pragmatic HTTP APIs and WebRTC, and provides open source reference implementations to showcase and bootstrap the new standard. Our focus is on simplicity, security, and supporting the fullest feature set.
Predicted by Gartner to add $1.9 trillion to the global economy by 2020, the Internet of Everything (IoE) is based on the idea that devices, systems and services will connect in simple, transparent ways, enabling seamless interactions among devices across brands and sectors. As this vision unfolds, it is clear that no single company can accomplish the level of interoperability required to support the horizontal aspects of the IoE. The AllSeen Alliance, announced in December 2013, was formed with the goal to advance IoE adoption and innovation in the connected home, healthcare, education, aut...
SYS-CON Events announced today that Red Hat, the world's leading provider of open source solutions, will exhibit at Internet of @ThingsExpo, which will take place on November 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA. Red Hat is the world's leading provider of open source software solutions, using a community-powered approach to reliable and high-performing cloud, Linux, middleware, storage and virtualization technologies. Red Hat also offers award-winning support, training, and consulting services. As the connective hub in a global network of enterprises, partners, a...