Welcome!

Web 2.0 Authors: Trevor Parsons, Yeshim Deniz, Pat Romanski, Carmen Gonzalez, Jason Bloomberg

News Feed Item

UCB Harnesses the Voices of the Crohn's Disease Community during Crohn's and Colitis Awareness Week

Nationwide Campaign Features Notable Public Figures Living with Crohn's

ATLANTA, Nov. 30, 2012 /PRNewswire/ -- In recognition of Crohn's and Colitis Awareness Week (December 1-7), UCB, Inc. is directing a national effort to educate the public about Crohn's disease and inspire those living with the condition to speak out about it.  The campaign will hinge on real stories from real people succeeding in the face of Crohn's disease, adding clarity to a misunderstood condition while providing a platform for Crohn's patients to engage and draw support from one another.  Joining the cause are a diverse group of public figures who live with the condition – including Olympic kayaker Carrie Johnson and guitarist for the Grammy Award-winning band Pearl Jam Mike McCready – as well as everyday heroes like Lois Fink, co-founder of the IBD and Ostomy Awareness Ribbon, and Crohn's Advocates Cindy W., a community volunteer, and Ray C., a race car driver.

December 1-7 was designated Crohn's and Colitis Awareness Week in 2011 by the U.S. Congress[i] to educate the public about Crohn's disease and ulcerative colitis, two painful Inflammatory Bowel Diseases (IBD) that affect 1.4 million Americans.  Approximately half of the people with IBD have Crohn's disease, a chronic disorder that can be extremely painful and difficult to diagnose and treat. [ii]

Crohn's disease can take an emotional toll in addition to its physical symptoms.  Tasks like working, running errands, traveling and maintaining social or romantic relationships can often present a challenge.  Due to the persistent stigmas surrounding Crohn's disease, people living with the condition can experience feelings of embarrassment, confusion, frustration and isolation. 

"Learning I had Crohn's disease was overwhelming at first, and I felt isolated by how little I knew about the condition and the affects it would have on my life.  By educating myself and reaching out to people succeeding with Crohn's disease, I quickly reached the point where I could focus on the positive and live my life," said Johnson, who was diagnosed with Crohn's disease in 2003.  "Awareness and education can be incredibly powerful.  I want to show the world that by putting a name and a face on Crohn's disease, we can break down the isolating barriers and inspire hope in a better future."  

UCB Drives Awareness and Action
As part of a week-long tribute to the vibrant spirit of the Crohn's disease community, UCB will share videos capturing success stories from courageous individuals with Crohn's disease on the Crohn's & Me Facebook page.  Videos will feature inspiring individuals living with Crohn's disease, including Johnson, Fink and the Crohn's Advocates.

In addition, Crohn'sAdvocate™, a program that includes a team of more than 20 Advocates committed to educating the public about Crohn's disease and overcoming stigmas associated with the condition, will mobilize in early December to share their experiences, dispel myths and provide hope to others seeking to live their best life with Crohn's disease.  The Advocates will share their stories about living beyond the boundaries of Crohn's disease on Facebook.  The Advocates will also take to social media alongside Carrie Johnson to spotlight UCB's support programs that help people live beyond the boundaries of Crohn's disease.

"Crohn's and Colitis Awareness Week is the perfect time to celebrate the significant strides made to educate the public about Crohn's disease," said Carol Satler, MD, PhD, Vice President, U.S. Medical Affairs, UCB, Inc.  "This progress has been driven by individuals willing to share their personal stories about living well with Crohn's disease, which creates heightened visibility for an often misunderstood and stigmatized condition.  As a patient-centric company, we at UCB are using this time to celebrate those who courageously inspire others to talk about Crohn's disease and the importance of proper diagnosis and treatment."

More information about Crohn's and Colitis Awareness Week can be found on the Crohn's and Colitis Foundation of America website.  Information on the many resources UCB offers for the Crohn's disease community can be found at www.CrohnsAndMe.com or www.facebook.com/CrohnsAndMe.

UCB will also collaborate with HealthyWomen to spotlight Crohn's disease among the millions who depend on the organization for answers to pressing and personal healthcare questions.  Visit www.HealthyWomen.org for information on managing Crohn's disease, and look for a guest blog post from Carrie Johnson on how she overcame her condition and qualified for the Olympics not once, but three times.

About Crohn's Disease[ii]
Crohn's disease (CD) is a chronic, progressive, destructive disorder that causes inflammation of the gastrointestinal (GI) tract, most commonly at the end of the small intestine (the ileum) and beginning of the large intestine (the colon).  If not effectively treated, it may result in the need for surgery and hospitalization.  CD has been estimated to affect as many as 700,000 Americans.  People with CD can experience an ongoing cycle of flare-up and remission throughout their lives.

About UCB
UCB, Brussels, Belgium (www.ucb.com) is a global biopharmaceutical company focused on the discovery and development of innovative medicines and solutions to transform the lives of people living with severe diseases of the immune system or of the central nervous system.  With more than 8,500 people in about 40 countries, the company generated revenue of EUR 3.2 billion in 2011.  UCB is listed on Euronext Brussels (symbol: UCB).

About the Crohn'sAdvocate™ Program
Since 2009, UCB has supported the Crohn'sAdvocate™ program, which aims to connect, educate and empower those living with Crohn's disease through a variety of resources, guidance and support.  The program includes a team of more than 20 inspiring Crohn's Advocates who raise awareness of the condition by sharing with others their personal journeys living with the disease.  The program also publishes Crohn'sAdvocate, a free magazine that contains fact-based educational articles, reader-submitted content and profiles of advocates, celebrities, athletes and everyday heroes who live beyond the boundaries of Crohn's disease.

For further Information:
Andrea Levin, Associate Director, U.S. Communications and Public Relations
770.970.8352, [email protected]

Dena Koklanaris, Cooney/Waters Group
212.886.2228, [email protected]

[i] GPO.gov. Senate Resolution 199. Accessed 10/25/12. http://www.gpo.gov/fdsys/pkg/BILLS-112sres199is/pdf/BILLS-112sres199is.pdf

[ii] Crohn's & Colitis Foundation of America, About Crohn's Disease. Accessed 8/24/12. (http://www.ccfa.org/what-are-crohns-and-colitis/what-is-crohns-disease/).

SOURCE UCB

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

@ThingsExpo Stories
The definition of IoT is not new, in fact it’s been around for over a decade. What has changed is the public's awareness that the technology we use on a daily basis has caught up on the vision of an always on, always connected world. If you look into the details of what comprises the IoT, you’ll see that it includes everything from cloud computing, Big Data analytics, “Things,” Web communication, applications, network, storage, etc. It is essentially including everything connected online from hardware to software, or as we like to say, it’s an Internet of many different things. The difference ...

ARMONK, N.Y., Nov. 20, 2014 /PRNewswire/ --  IBM (NYSE: IBM) today announced that it is bringing a greater level of control, security and flexibility to cloud-based application development and delivery with a single-tenant version of Bluemix, IBM's platform-as-a-service. The new platform enables developers to build ap...

Cloud Expo 2014 TV commercials will feature @ThingsExpo, which was launched in June, 2014 at New York City's Javits Center as the largest 'Internet of Things' event in the world.
An entirely new security model is needed for the Internet of Things, or is it? Can we save some old and tested controls for this new and different environment? In his session at @ThingsExpo, New York's at the Javits Center, Davi Ottenheimer, EMC Senior Director of Trust, reviewed hands-on lessons with IoT devices and reveal a new risk balance you might not expect. Davi Ottenheimer, EMC Senior Director of Trust, has more than nineteen years' experience managing global security operations and assessments, including a decade of leading incident response and digital forensics. He is co-author of t...
The major cloud platforms defy a simple, side-by-side analysis. Each of the major IaaS public-cloud platforms offers their own unique strengths and functionality. Options for on-site private cloud are diverse as well, and must be designed and deployed while taking existing legacy architecture and infrastructure into account. Then the reality is that most enterprises are embarking on a hybrid cloud strategy and programs. In this Power Panel at 15th Cloud Expo (http://www.CloudComputingExpo.com), moderated by Ashar Baig, Research Director, Cloud, at Gigaom Research, Nate Gordon, Director of T...
Explosive growth in connected devices. Enormous amounts of data for collection and analysis. Critical use of data for split-second decision making and actionable information. All three are factors in making the Internet of Things a reality. Yet, any one factor would have an IT organization pondering its infrastructure strategy. How should your organization enhance its IT framework to enable an Internet of Things implementation? In his session at Internet of @ThingsExpo, James Kirkland, Chief Architect for the Internet of Things and Intelligent Systems at Red Hat, described how to revolutioniz...
Technology is enabling a new approach to collecting and using data. This approach, commonly referred to as the "Internet of Things" (IoT), enables businesses to use real-time data from all sorts of things including machines, devices and sensors to make better decisions, improve customer service, and lower the risk in the creation of new revenue opportunities. In his General Session at Internet of @ThingsExpo, Dave Wagstaff, Vice President and Chief Architect at BSQUARE Corporation, discuss the real benefits to focus on, how to understand the requirements of a successful solution, the flow of ...
The security devil is always in the details of the attack: the ones you've endured, the ones you prepare yourself to fend off, and the ones that, you fear, will catch you completely unaware and defenseless. The Internet of Things (IoT) is nothing if not an endless proliferation of details. It's the vision of a world in which continuous Internet connectivity and addressability is embedded into a growing range of human artifacts, into the natural world, and even into our smartphones, appliances, and physical persons. In the IoT vision, every new "thing" - sensor, actuator, data source, data con...
"BSQUARE is in the business of selling software solutions for smart connected devices. It's obvious that IoT has moved from being a technology to being a fundamental part of business, and in the last 18 months people have said let's figure out how to do it and let's put some focus on it, " explained Dave Wagstaff, VP & Chief Architect, at BSQUARE Corporation, in this SYS-CON.tv interview at @ThingsExpo, held Nov 4-6, 2014, at the Santa Clara Convention Center in Santa Clara, CA.
Focused on this fast-growing market’s needs, Vitesse Semiconductor Corporation (Nasdaq: VTSS), a leading provider of IC solutions to advance "Ethernet Everywhere" in Carrier, Enterprise and Internet of Things (IoT) networks, introduced its IStaX™ software (VSC6815SDK), a robust protocol stack to simplify deployment and management of Industrial-IoT network applications such as Industrial Ethernet switching, surveillance, video distribution, LCD signage, intelligent sensors, and metering equipment. Leveraging technologies proven in the Carrier and Enterprise markets, IStaX is designed to work ac...
"There is a natural synchronization between the business models, the IoT is there to support ,” explained Brendan O'Brien, Co-founder and Chief Architect of Aria Systems, in this SYS-CON.tv interview at the 15th International Cloud Expo®, held Nov 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA.
C-Labs LLC, a leading provider of remote and mobile access for the Internet of Things (IoT), announced the appointment of John Traynor to the position of chief operating officer. Previously a strategic advisor to the firm, Mr. Traynor will now oversee sales, marketing, finance, and operations. Mr. Traynor is based out of the C-Labs office in Redmond, Washington. He reports to Chris Muench, Chief Executive Officer. Mr. Traynor brings valuable business leadership and technology industry expertise to C-Labs. With over 30 years' experience in the high-tech sector, John Traynor has held numerous...
Bit6 today issued a challenge to the technology community implementing Web Real Time Communication (WebRTC). To leap beyond WebRTC’s significant limitations and fully leverage its underlying value to accelerate innovation, application developers need to consider the entire communications ecosystem.
The 3rd International @ThingsExpo, co-located with the 16th International Cloud Expo - to be held June 9-11, 2015, at the Javits Center in New York City, NY - announces that it is now accepting Keynote Proposals. The Internet of Things (IoT) is the most profound change in personal and enterprise IT since the creation of the Worldwide Web more than 20 years ago. All major researchers estimate there will be tens of billions devices - computers, smartphones, tablets, and sensors - connected to the Internet by 2020. This number will continue to grow at a rapid pace for the next several decades.
The Internet of Things is not new. Historically, smart businesses have used its basic concept of leveraging data to drive better decision making and have capitalized on those insights to realize additional revenue opportunities. So, what has changed to make the Internet of Things one of the hottest topics in tech? In his session at @ThingsExpo, Chris Gray, Director, Embedded and Internet of Things, discussed the underlying factors that are driving the economics of intelligent systems. Discover how hardware commoditization, the ubiquitous nature of connectivity, and the emergence of Big Data a...
Almost everyone sees the potential of Internet of Things but how can businesses truly unlock that potential. The key will be in the ability to discover business insight in the midst of an ocean of Big Data generated from billions of embedded devices via Systems of Discover. Businesses will also need to ensure that they can sustain that insight by leveraging the cloud for global reach, scale and elasticity.
SYS-CON Events announced today that Windstream, a leading provider of advanced network and cloud communications, has been named “Silver Sponsor” of SYS-CON's 16th International Cloud Expo®, which will take place on June 9–11, 2015, at the Javits Center in New York, NY. Windstream (Nasdaq: WIN), a FORTUNE 500 and S&P 500 company, is a leading provider of advanced network communications, including cloud computing and managed services, to businesses nationwide. The company also offers broadband, phone and digital TV services to consumers primarily in rural areas.
SYS-CON Events announced today that IDenticard will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. IDenticard™ is the security division of Brady Corp (NYSE: BRC), a $1.5 billion manufacturer of identification products. We have small-company values with the strength and stability of a major corporation. IDenticard offers local sales, support and service to our customers across the United States and Canada. Our partner network encompasses some 300 of the world's leading systems integrators and security s...
IoT is still a vague buzzword for many people. In his session at @ThingsExpo, Mike Kavis, Vice President & Principal Cloud Architect at Cloud Technology Partners, discussed the business value of IoT that goes far beyond the general public's perception that IoT is all about wearables and home consumer services. He also discussed how IoT is perceived by investors and how venture capitalist access this space. Other topics discussed were barriers to success, what is new, what is old, and what the future may hold. Mike Kavis is Vice President & Principal Cloud Architect at Cloud Technology Pa...
Cloud Expo 2014 TV commercials will feature @ThingsExpo, which was launched in June, 2014 at New York City's Javits Center as the largest 'Internet of Things' event in the world. The next @ThingsExpo will take place November 4-6, 2014, at the Santa Clara Convention Center, in Santa Clara, California. Since its launch in 2008, Cloud Expo TV commercials have been aired and CNBC, Fox News Network, and Bloomberg TV. Please enjoy our 2014 commercial.